Understanding

A place for parents to find help for the siblings of kids with intellectual disability and autism.

Introduction

This page has been informed by the research and advocacy work of Siblings Australia.

It is important that children are provided with information about their sibling’s intellectual disability and/or autism. Understanding their sibling’s disability will:

  • help children feel better about themselves and their sibling
  • improve the sibling relationship
  • help when children get questions and comments from others

Many children want to be involved in the life of their sibling with intellectual disability and/or autism. It is essential to recognise the help and support they provide and let them know it is appreciated. It is also essential to not overload children with responsibility. Helping children to feel appreciated and confident will help sustain positive sibling relationships, which can be one of the longest of our lifetimes.

You can build a child’s knowledge of their sibling’s disability and help them develop skills to build up their self-esteem. It’s a good idea to start age-appropriate conversations when children are young. 

Strategies for you to try

Share insights
Share what insights you can to help children know more about how intellectual disability and autism affect how their sibling feels, learns, and interacts. 
Talking
Talk soon, talk often, and revisit previously explained topics about disability and autism. Simple messages such as, you cannot catch it, or, no one caused it, can be helpful.
Talk before school
Talk to children before they start school, as this can help them to be more confident when talking to and answering the questions of others. You can also let your child know that they don’t have to answer questions about their sibling if they don’t want to.
Use age-appropriate resources
Use age-appropriate resources to help explain their sibling’s disability.
Provide age-appropriate resources
Provide age-appropriate resources for children to explore independently to help them understand their sibling’s disability.
Involve children
Involve children, if they want to be involved, in family discussions about routines, plans and adaptations, including those that provide for the needs of their sibling and plans for communicating about puberty. See more in Planet Puberty Communication & social skills.  

Conversation Starters

“Your sibling’s disability means they cannot talk, but they still want to communicate how they feel.”
“Your sibling is autistic. Have you heard of autism? What do you know about it?”
“Intellectual disability causes people to think a bit differently from you. Have you noticed that your sibling plays differently from you?”

Explore the planet

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Introduction to puberty for girls
Understanding

Topics controller

Use this area to find out what the current topic is and to navigate forward or back.

Welcome to lessons!

Lessons help keep you and your child on track to navigating planet puberty. We have specially curated these to help teach certain themes. Let’s have a look around to get you aquainted.

Supporting your child’s independence – Michael’s story

Did your period make you feel different? – Story

Lesson list and share

Click here to see the full list of topics covered by the lesson. Also feel free to share the lesson and your current position.

Share your progress!

Keep track or share your progress with yourself or someone else by copying or bookmarking the link below. This way you can see what lessons have and haven’t been completed.

Going back

Click here to get back to the main website after you have finished.